Central European Lung Cancer Patient Network CELCAPANET
Central European Lung Cancer Patient NetworkCELCAPANET

Patient information

Many self-help groups produce and publish information for patients.

 

There are quality criteria for patient informationhttp://www.discern.org.uk/index.php

 

A good quality publication about treatment choices will:

  1. Have explicit aims
  2. Achieve its aims
  3. Be relevant to consumers
  4. Make sources of information explicit
  5. Make date of information explicit
  6. Be balanced and unbiased
  7. List additional sources of information
  8. Refer to areas of uncertainty
  9. Describe how treatment works
  10. Describe the benefits of treatment
  11. Describe the risks of treatment
  12. Describe what would happen without treatment
  13. Describe the effects of treatment choices on overall quality of life
  14. Make it clear there may be more than one possible treatment choice
  15. Provide support for shared decision-making

 

Concerning websites there should also be the date of actualization and a data privacy statement. There should not be any brand name of pharmaceuticals mentioned.

 

If the information is authored by experts they should be named as well as the hospitals (address) they work with.

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